Vision
Seeing a future where individuals with sickle cell disease can live healthy and fulfilling lives, free from the limitations imposed by the disease, achieved through widespread awareness and accessible treatment.
Mission
- Provide Routine Medication for SCD Patients.
- Improve Health Outcomes for Sickle-Cell Patients
- Reduce Mortality and Morbidity
- Promote Education and Awareness
- Advocate for Policy Change
- Provide Support Services
Provide Routine Medication for SCD Patients:
Providing routine medication to boost the immunity of SCD patients. This takes place every Thursday at the Sickle Cell Clinic of Adeoyo State Hospital in Ibadan, Nigeria. The drugs used in treatment of sickle cell disease (SCD) include antimetabolites, analgesics, antibiotics, vaccines, and nutritional agents.
Improve Health Outcomes for Sickle-Cell Patients:
Key strategies include: early diagnosis and screening, consistent access to quality healthcare, proactive management with medications like hydroxyurea, maintaining a healthy lifestyle with proper hydration and nutrition, managing pain effectively during crises, regular monitoring for complications, promoting patient education and psychosocial support, and advocating for research into new treatment options like gene therapy; all while ensuring culturally sensitive care and addressing potential disparities in access to healthcare.
Reduce Mortality and Morbidity:
Key strategies include: early diagnosis through newborn screening, regular access to specialized sickle cell clinics, consistent use of low-dose hydroxyurea therapy, proactive management of complications like pain crises and acute chest syndrome, maintaining good hydration, avoiding extreme temperatures, folic acid supplementation, and regular blood transfusions when necessary; all while promoting patient education on self-care practices to minimize complications.
Promote Education and Awareness:
We will use social media platforms to share informative content, host community events and workshops, partner with healthcare organizations, educate schools and community groups, advocate for policy changes, and leverage designated awareness months like September (National Sickle Cell Awareness Month) to raise visibility; always ensuring information is accurate, accessible, and sensitive to the experiences of those living with Sickle Cell disease.
Advocate for Policy Change:
We will endeavor to push for legislation and research funding to improve access to quality healthcare, promote early screening, support research for new treatments and potential cures, and raise awareness about the disease, particularly within vulnerable communities, by engaging with policymakers, healthcare providers, and the public at large.
Provide Support Services:
We will focus on creating a strong support system by actively listening to sickle cell patients, educating them about the disease, encouraging healthy habits like hydration, providing emotional support during crises, advocating for their needs, connecting them with relevant support groups, and ensuring access to quality healthcare with a specialized sickle cell team.
